American YouTube celebrity Andrew Rea, known for his online cooking channel Binging with Babish, launched a fundraising challenge in honor of Garmt van Soest from Utrecht, who recently passed away from the consequences of ALS. The goal of the Hot Pepper Challenge is to raise as much funds and awareness as possible for the fatal disease.
Former football player and ALS sufferer Fernando Ricksen was told he could not get onto a KLM flight from Valencia to Amsterdam on Thursday. He was refused because he is unable to loosen his seat belt by himself, his biographer Vincent de Vries said to the Gelderlander.
More than 3 thousand people took part in the fifth anniversary edition of the Amsterdam city swim on Sunday. They swam 2 kilometers through the Amsterdam canals to raise money for research into the currently incurable nerve and muscle disease ALS
Patients suffering from the fatal disease ALS sometimes have to wait so long for aid devices like wheelchairs and stair lifts, that they no longer need them by the time they finally arrive. Because of the many bureaucratic battles they face and how quickly the disease progresses, some patients have already passed away when the aids they requested are finally available.
The former director of the ALS Netherlands, Eric Nolet, transferred 92 thousand euro of the foundation's money into a private account at the beginning of this year.
The 2000 people who took part in this year's Amsterdam City Swim rose €1,921,421 for ALS research. The organization announces this through their website.
The global rage of the Ice Bucket Challenge has made its mark in ALS donations, and ALS Nederland is feeling the generosity as well. In August alone, the foundation has received more than 14,000 donations, compared to 200 donations every month, the NOS reports.
Philips and Accenture have developed new technology that allows gadgets to be moved by brainwaves. This is especially designed to help patients with muscular movement deficiencies. For now, the technology is still at its proof of concept stage, and has not yet been tested, NU.nl reports.